Synopses & Reviews
During the Cold War, an alliance between American scientists, pharmaceutical companies, and the US military pushed the medical establishment into ethically fraught territory. Against Their Will reveals the little-known history of unethical and dangerous medical experimentation on children in the United States. Through rare interviews and the personal correspondence of renowned medical investigators, Hornblum, Newman, and Dober document how children from infants to teenagers, became human research subjects in terrifying experiments. They were drafted as "volunteers" to test vaccines, doused with ringworm, subjected to electric shock, given lobotomies, and exposed to chemical warfare agents. This groundbreaking book shows how institutional superintendents influenced by eugenics often turned these children over to scientific researchers without a second thought. Based on years of archival research, this is an important and disturbing look at the dark underbelly of American medical history.
Review
“Uncovers the Cold War alliance between American scientists, pharmaceutical companies, and the US military that pushed the medical establishment into ethically fraught territory.”—Publishers Weekly
Review
"Against Their Will is a powerful, important book, which lucidly documents one of the most shameful--and frankly horrifying--chapters in American history. I hope that it will be widely read and discussed, and that as we confront this past, it will prompt us to think of this question: How are we doing today as a society when it comes to protecting and nurturing our most vulnerable children?”—Robert Whittaker, author of Anatomy of an Epidemic
"Against Their Will is a chilling book that will open your eyes to one of the darkest chapters in our nation's history. Sometimes disturbing, at times appalling, it is the kind of book that keeps you turning pages to find out more. The authors have researched the subject in depth and have done a masterful job documenting what, to most of us, is shocking and unthinkable. Highly recommended.”—Andrew Goliszek, author of In The Name of Science
"Against Their Will is a moving and impressively researched account of science gone awry, and it's full of unjustly forgotten stories from a dark era. It will engross anyone interested in medicine's past, the institutional treatment of children, and the best of investigative writing."— Jack El-Hai, author of The Lobotomist: A Maverick Medical Genius and His Tragic Quest to Rid the World of Mental Illness
“The authors of Against Their Will have done an outstanding job in identifying these egregious events and critically reviewing the fascinating, sociopolitical circumstances in which they occurred. This thoroughly researched, highly absorbing book will undoubtedly have a significant positive impact upon medical research in future years. A truly marvelous contribution to patient safety and human dignity by three erudite authors.”—Cyril Wecht, MD, author of From Crime Scene to Courtroom
Synopsis
"Horrifying and painstakingly documented history . . . [of] the chilling legacy of negative eugenics."—Publishers Weekly
About the Author
Allen M. Hornblum is the author of five books, including Acres of Skin and Sentenced to Science. His work has been featured on CBS Evening News, Good Morning America, NPRs Fresh Air, BBC World Service, and The New York Times. He lives in Philadelphia, PA.Judith Lynn Newman is an associate professor of Human Development at Pennsylvania State University (Abington).Gregory J. Dober writes on medical issues for organizational newsletters such as Prison Legal News.
Table of Contents
Table of Contents
Introduction: “Theyd come for you at night.”
Chapter 1 - The Heroes of Science in the “Gilded Age of Medicine ”
Chapter 2 - Eugenics and the Devaluing of Institutionalized Children: “The elimination of defectives.”
Chapter 3 - World War II, Patriotism, and the Nuremberg Code: “It was a good code for barbarians.”
Chapter 4 - Impact of the Cold War on Human Experimentation: “There werent any guidelines as I can recall.”
Chapter 5 - Vaccines: ”Institutions for hydrocephalics and other similar unfortunates.”
Chapter 6 - Skin, Dietary, and Dental Studies: “The kids in these institutions are so desperate for affection.”
Chapter 7 - Radiation Experiments on boys: “The littlest dose of radiation possible.”
Chapter 8 - Psychological Treatment: “Lobotomy … is often the starting point in effective treatment.”
Chapter 9 - Psychological Abuse: “I call that brainwashing.”
Chapter 11 - Research Misconduct: “Science actually encourages deceit.”
Chapter 12 - Conclusion: Upholding Ethical Principles
Bibliography